This is from the blog babyfaithhope.blogspot.com. Please go to the site for amazing photos, videos, and updates. The last update I have posted is of Faith at 39 days old, which is below Myah's introduction. Unfortunately, due to the large number of horrible comments about this story, I've had to delete the comment feature.
Welcome!
Thank you for being here and for all your thoughts and prayers...
My name is Myah. I'm 23 years old and a single mom to a very special little girl. When I was 19 weeks pregnant, I was told that my baby had no brain. This condition is known as "anencephaly." I was told that my baby was only alive because she was attached to me, but that she couldn't survive on her own. The doctor said that I could continue the pregnancy safely, but that my baby would die shortly after being born. Or I could choose to terminate the pregnancy then, which would mean being induced at 20 weeks and letting my baby die without ever seeing or holding her (I don't even want to know what they do with babies in this case). Well, to some people this would be a difficult decision, but it wasn't for me. I knew there was nothing to gain by terminating the pregnancy and I already loved my daughter more than anyone else in the world. Even if she was unconscious like the doctors said and lived for only a few seconds or minutes --even if she was stillborn --it was worth it to me. And so we began our journey...
Today, as I type this, Faith is 20 days old. Apart from a sterile dressing on her head that needs to be changed once a day, Faith lives a completely normal life. She isn't suffering or sickly, like you would expect. With no tubes and no machines supporting her life, she continues to thrive. She seems to function at the same level as any "normal" baby. In fact, she may be a little more advanced for her age. How many babies smile before they are born, start cooing at one day old, and can sit up by 5 days old? I'm just saying!
I hope that by sharing our story, we can shed some light on this condition they call "anencephaly." It may seem all doom and gloom if you get this diagnosis, but trust me... there is more hope and joy in store than you could ever imagine. I know that first-hand! You can read all the text books and medical journals you want, but the truth is revealed in babies like Faith. This is real life, not a text book. When you see the pictures and watch the videos, you can't deny that this life is precious and worth protecting.
Myah
(Faith's mom)
Monday, March 30, 2009
39 days old
Okay, I know I haven't posted pretty much all week but Faith is doing fine... I just haven't had any time to spend typing on the computer. I've been busy taking care of my sneezy baby. We had a pretty good week last week. I guess the highlight would be Faith's CAT scan, which was done on Thursday (her 5-week birthday). There were some doubts about whether or not Faith was misdiagnosed because of how well she is doing and because she is not "supposed" to have any consciousness and yadda yadda yadda, so we had a scan done just to see what was inside her head. The technicians who performed the scan had no idea about Faith's condition beforehand and afterwards asked me, "Does she have a malformation? She is missing skull bones, right? Okay... we just wanted to make sure..." Caught them off-guard a little bit! On Friday we got the results. A neurosurgeon, neuro-radio-interventionologist (big word), and a radiologist looked at the photos and they all agreed that the diagnosis of anencephaly was correct. They have no explanation as to how she is functioning on a conscious level without a cerebrum, or how she is even alive. It's the kind of miracle that makes atheists scratch their heads...



